If you love someone with fibromyalgia know that suffer from severe pain that vary from day to day and hour to hour. This we can not predict. So we want you to understand that sometimes things have to cancel at the last minute and this bothers us as much as you.
We want you to know that we ourselves have to learn to accept our body with its limitations, and is not easy. There is no cure for fibromyalgia but we try to relieve symptoms daily. We ask not suffer from this.
Many times we feel overwhelmed and can not cope with more stress than we have. If possible , do not add more stress to my body.
Although we see well, we do not feel good. We have learned to live with constant pain most days. When you see us happy does not necessarily mean we do not have pain, we are simply dealing with it. Some people think we can not be so bad if we are good. The pain is not. This is a chronic “invisible” disease and it is not easy for us to have it.
Understand, please, because we can not work and is not before us to be vague. Our fatigue and pain is unpredictable and because of this we have to make adjustments in our lifestyle. Something that seems simple and easy to do it is not for us and can cause us much fatigue and pain. Not necessarily something we did yesterday we can do today, but also does not mean that we do not be able to.
Sometimes we get depressed. Who would not be depressed with a strong and constant pain? It has been found that depression occurs with equal frequency in fibromyalgia than in any other chronic pain condition. It gives us pain to be depressed but we depressed by pain and inability to do what we used. We also feel bad when there is no support and understanding of doctors, family and friends. Please understand me , with your support and help aminoras my pain.
While we sleep all night we do not rest enough. People with fibromyalgia have poor sleep quality, which makes the pain worse day who sleep poorly.
For us it is not easy to stay in one position (albeit seats) for a long time. This causes us much pain and takes time to recover. Why not let some activities that we know that this factor would hurt us. Sometimes we go although we know the consequences it will bring.
We’re not going crazy if we sometimes forget simple things, what we were saying, someone’s name or say the wrong word. These are cognitive problems that are part of fibromyalgia especially in the days when we have a lot of pain. It is a strange thing for you and for me. But we laugh together and help us keep our sense of humor.
Most people with fibromyalgia are most familiar with this condition some doctors and others as we have been forced to educate ourselves to understand our body. So, please, if you’re going to suggest a “cure” for me do not. Not because I do not appreciate your help or will not get better, but because I keep fairly informed and I’ve tried many things.
We are very happy when we have a day with little or no pain when we sleep, when we do something we have not achieved that long ago, when we understand.
We truly appreciate everything you have done and can do for me; including your effort to inform and understand. Little things mean a lot to me and I need you to help me. Be gentle and patient. Remember that within this body still sore and tired I still am. I’m trying to learn to live day to day with my new limitations and keep hope in tomorrow. Help me laugh and see the wonderful things God gives us.