You have already been let go or have quit your job,
you are asking questions about permanent disability and how long it takes to get it.
You have heard horror stories about people being denied and the process taking years.
You are struggling to make ends meet. Maybe have a person who takes care of you.
You spend a lot of your day in bed, although you still take advantage of that one good day once in awhile.
You are sore, very sore, you cry a lot, you feel like a prisoner in your own body.
By this time you have already explained to your friends that it still feels good to be invited even if you don’t go.
You have found that the only people that can relate to you are in a similar predicament.
You wish your friends and family could understand.
Stage 6 (The Final Stage)
You may or may not still be waiting for disability pension.
You cannot hold down a job.
Fibromyalgia is now your lifestyle, most of your friends are living with fibromyalgia themselves,
everything you do takes all your precious energy, simple daily tasks you took for granted in earlier stages,
going to the bathroom, washing your hair, taking a shower, getting dressed,
tying your shoes, take all you can give. You get irritated by your hair or clothes touching your skin,
you have no energy or desire to put on
before going out, no energy to keep a neat home.
With all the medication you are on now or have tried,
you are dealing with side effects and constant pain.
You are a human and still enjoy some things, like watching TV.
You try to stay current on any news regarding fibromyalgia,
in hopes they are closer to finding a cure.
Most of your old friends are not around anymore,
they have things to do.
You need to rest a lot.
It’s easy to feel overwhelmed in this stage,
because things are piling up around you: bills, laundry, dishes.
You do a little everyday, you push yourself so you don’t feel like your day was wasted in bed,
you feel guilty that you no longer pull your own weight in the house.
Your kids, spouse or family do things for you more than ever.
They try to do it in a nice manner but you still feel like a burden,
you can’t remember anything,
cannot recall names or dates and you lose your train of thought mid-sentence.
Also you know more about fibromyalgia in this stage then your own doctor and basically laugh when trying a new medication.
You are without hope, same drill as before, same results, nothing helps much.
The original post that inspired this page was written by Angela Wise and posted on her page in 2014